Your first step for seeking end of life care is to speak to your relative’s GP or a healthcare professional who treats them. They will help you understand which services are available locally.
We have listed some key services available to you in Sussex that will also be able to help.
Dying Matters aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.
Their UK wide directory of services, called ‘Find Me Help’, details a wide range of practical, financial and caring services. This includes getting help around the house, taking control of finances or speaking to a counsellor.
Carers can also search for different kinds of support available to them, including medical help, respite cover, carers’ support groups and bereavement services.
Care Homes offering Palliative care
Macmillan Cancer Support
This national charity can help you find practical and emotional support at the end of life. Macmillan Cancer Support believe it is possible to have a ‘good death’ and they aim to support terminally ill people in achieving that.
Macmillan Cancer Support partner with local care teams to support sufferers and their families across the UK, including Sussex. They can also help with advanced care planning, specialist care and support through bereavement.
You can find out more here.
Echo is a care hub in West Sussex which offers telephone support for people diagnosed with terminal illnesses and their families.
You can call Echo 24 hours a day to talk to one of their specifically trained nurses. Echo nurses can offer you advice on your personal situation, answering any specific questions you may have.
You can find out more about Echo and how they can help you here.
Palliative Care Partnership
A union of Sussex Community NHS Trust and Martlets Hospice, this organisation supports people in Brighton & Hove who are living with advanced cancers or terminal illnesses.
A team of specialised doctors, nurses and social workers provide support for patients at home, seven days a week. They will also advise other health providers who are caring for your relative.
Patients can access the Palliative Care Partnership through a referral from their GP and you can find out more about the service here.
NHS Continuing Healthcare
For ongoing care in your home, or in a residential home, you maybe able to access NHS continuing healthcare which is fully funded by the NHS. Patients can be assessed by a team of healthcare professionals to determine their eligibility, with support being arranged based on their assessed needs.
Proactive care is supplied by a team of social workers and nurses who support people with long-term health conditions. The Proactive care teams work to ensure their patients get the best support for them through working closely with NHS staff and others in the community.
You can find out more about more about NHS services by visiting the NHS Choices website.
There are several major local hospices in Sussex who may be able help your relative including:
- Martlets in Brighton and Hove is a hospice that cares for people with terminal illnesses.
- St Catherine’s Hospice in West Sussex cares for people at the end of their lives.
- St Wilfred’s Hospice in East Sussex provides care for people with life limiting illnesses.