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Could you help with Dementia Research?

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Written by Helen Burgess

‘Join Dementia Research’ is a new service to encourage people affected by dementia to take part in health studies to improve dementia care and treatment.

Dementia affects 850,000 people in the UK and the only way to beat the condition is through research.

Why is dementia research important now?

Dementia is one of the biggest challenges we face today. The number of people with Alzheimer’s disease, vascular dementia, and other types of dementia, is set to double over the next 30 years.

Research offers hope. It is only through research that scientists can understand what causes the disease, develop effective treatments, improve care and hopefully one day find a cure. But for research to progress – people are needed to take part in more studies.

One of the big difficulties researchers face today is recruiting participants for their studies. At the same time, many people are looking for studies to contribute to and take part in, but don’t know where to find out about them.

This is why the National Institute for Health Research (NIHR) in partnership with Alzheimer ScotlandAlzheimer’s Research UK and Alzheimer’s Society have developed Join Dementia Research, a service which allows people to register their interest in participating in dementia research and be matched to suitable studies.

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What types of research could you take part in?

The service delivers new opportunities for people to play their part in beating dementia; connecting researchers with people who want to participate in studies.

There are lots of types of studies, such as those looking at prevention or new ways to diagnose the condition; drug studies trialling new treatments; or surveys aiming to improve the quality of life for people with dementia and their carers.

How do I get involved?

Signing up for it is really easy and you could help make a real difference for people affected by dementia and their families. You can sign up online at Join Dementia Research or by calling one of the charity helplines and they will guide you through the registration process.

  • Alzheimer Scotland (0808 808 3000)
  • Alzheimer’s Research UK (0300 111 5111)
  • Alzheimer’s Society (0300 222 1122)

You will initially be asked a few basic questions which only takes a few minutes to complete.

You can also sign up on behalf of someone else if you are a carer or relative of someone with dementia, providing you have their consent or are acting in their best interests.

Help spread the word!

If you’d like to help raise awareness of Join Dementia Research in your dementia café, group or community within Norfolk and Suffolk, contact Helen Morse (helen.morse@nihr.ac.uk) who can support your events, provide materials and talk to groups.

About the author

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Helen Burgess

Helen has worked in the charity sector for 20 years in fundraising and marketing roles. Prior to becoming Regional Manager for Age Space Norfolk, Helen was at Age UK Norwich and brings a wealth of knowledge and experience on all aspects of elderly care.